RESOURCES

Specialists and Resources

Below are specialists I have personally seen: Dr. Jerry Molitor - University of Minnesota I started seeing Dr. Molitor when I was first diagnosed and still see him as my specialist. He is the specialist at the Scleroderma clinic at the University. Dr. Molitor was instrumental in providing treatment and physical therapy to help me regain my flexability and mobility to remain in the workforce. He is a caring expert, involved in research, and and lucky for me he is located in the midwest since I am from North Dakota. Dr. Molitor and his staff have really gone to bat for me recently as my condition declined. They got a very promising drug called actemra approved thru insurance for me. Dr. Daniel Furst - Pacific Arthritis - UCLA I met Dr. Furst in a clinical trial. He is a professor of medicine at UCLA Medical Center, an adjunct professor at the University of Washington - Seattle, and a research professor at the University of Florence in Italy. He has practices at the Arthritis Associates of Southern California, as well as the Seattle Rheumatology Associates in Seattle. Dr. Furst is a wealth of knowledge. He is involved in the Scleroderma foundation, research studies, and has written a book on scleroderma. He travels the states and other countries working with and training specialists. I think anyone who has scleroderma can benefit from making an appointment and meeting Dr. Furst whether you are able to continue care with him or not. I was in another study with Dr. Furst and am now seeing him as a patient. Amanda Lausch - Wound Clinic Jamestown Regional Medical Center Amanda is a wound & hyperbaric specialist at the Jamestown Regional Medical Center Wound Clinic in Jamestown, ND, which is a Healogics facility. She has an extensive knowledge of scleroderma and has been been treating my finger ulcers, and removing calcinosis promoting good tissue growth and healing in my fingers and hands. Her care has been finger-saving for me, with proactively promoting healing and minimizing any risk of infection. Dr. Lorinda Chung - Stanford University I have not met Dr. Chung personally, but have listed her here as she is the head of the trial for the treatment for calcinosis I was in. Website Resources
Dr Jerry Molitor University of Minnesota Scleroderma Specialist
Dr Daniel Furst Pacific Arthritis and UCLA Sclerodrma and Arthritis Specialist
Dr. Lorinda Chung Stanford University
Dr. Amanda Lausch - Wound Clinic Jamestown Regional Medical Center
Now is the time to promote awareness to achieve earlier diagnosis, and research to find a cure and better treatments. FEDERATION of EUROPEAN SCLERODERMA ASSOCIATIONS
RESOURCES

Specialists and Resources

Below are specialists I have personally seen: Dr. Jerry Molitor - University of Minnesota I started seeing Dr. Molitor when I was first diagnosed and still see him as my specialist. He is the specialist at the Scleroderma clinic at the Uni- versity. Dr. Molitor was instrumental in providing treatment and physical therapy to help me regain my flexability and mobility to remain in the workforce. He is a caring ex- pert, involved in research, and and lucky for me he is located in the midwest since I am from North Dakota. Dr. Molitor and his staff have really gone to bat for me recently as my condition declined. They got a very promising drug called actemra approved thru insurance for me. Dr. Daniel Furst - Pacific Arthritis - UCLA I met Dr. Furst in a clinical trial. He is a professor of medicine at UCLA Medical Center, an adjunct professor at the University of Washington - Seattle, and a re- search professor at the University of Florence in Italy. He has practices at the Arthritis As- sociates of Southern California, as well as the Seattle Rheumatology Associates in Seattle. Dr. Furst is a wealth of knowledge. He is in- volved in the Scleroderma foundation, research studies, and has written a book on scleroderma. He travels the states and other countries working with and training special- ists. I think anyone who has scleroderma can benefit from making an appointment and meeting Dr. Furst whether you are able to continue care with him or not. I was in an- other study with Dr. Furst and am now seeing him as a patient. Amanda Lausch - Wound Clinic Jamestown Regional Medical Center Amanda is a wound & hyperbaric specialist at the Jamestown Re- gional Medical Center Wound Clinic in Jamestown, ND, which is a Healogics facility. She has an extensive knowledge of scleroderma and has been been treating my finger ulcers, and removing calcinosis pro- moting good tissue growth and healing in my fingers and hands. Her care has been finger- saving for me, with proactively promoting healing and minimizing any risk of infection. Dr. Lorinda Chung - Stanford University I have not met Dr. Chung person- ally, but have listed her here as she is the head of the trial for the treatment for calcinosis I was in. Website Resources
Dr Jerry Molitor University of Minnesota Scleroderma Specialist
Dr Daniel Furst Pacific Arthritis and UCLA Sclerodrma and Arthritis Specialist
Dr. Lorinda Chung Stanford University
Dr. Amanda Lausch - Wound Clinic Jamestown Regional Medical Center
FEDERATION of EUROPEAN SCLERODERMA ASSOCIATIONS